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2-Tier NBS Labs
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2018 Classical HCU Research Grant
2018 Conference
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2019 Classical HCU Research Grant
2019 Conference
2019 Conference Pictures
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2020 Donations
2021 Conference
2021 Donations
2022 Cbl C Research Grant
- Silvia Vilasi – 6-month update
2022 Classical HCU Research Grant
2022 Conference
2022 Conference Pictures
2022 Donations
2022 Kids Zone
2022 Newborn Screening Grant
2023 Donations
2024 Cobalamin G and Severe MTHFR Research Grant
2024 Cobalamin G Research Grant
2024 Conference
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2024 Donations
Abby
About Us
Advocacy Webinar
Aeglea BioTherapeutics: Enzyme Replacement Therapy
Aimee
Alva
Amanda – Texas
Amazon Smile
Amy
Andrew
Angela Pipitone
Anna
Annette and Gig
Anniston from Mississippi
Annual Fundraising Thermometer
Art
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Azmae
Back to Care
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Back to Care Mentor Program
Back to School Webinar
Back to School: Snacks and Meals
Barbara
Ben – Georgia
Benjamin Bio
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Bharatkumar bio
Blank Bio
Board and Advisors
Brittany
Brooklyn
Calendar Page
Carson
Carson CblG
Carter-Georgia
Casey – Illinois
Casual for a Cause
Casual for a Cause: Motivate the Masses
Casual for a Cause: Playbook
Casual for a Cause: Team Captain
Charlotte’s Bio
Chris from MA
Christa
Classical HCU
Classical HCU Expression of Interest
Classical HCU Research
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Classical Homocystinuria Publications
Classical Homocystinuria: A toolkit for managing Cystathionine Beta Synthase
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Cobalamin Defects
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Colbie & Cayle – Montana
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Connecting the Dots
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Cooking With Cambrooke
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Curtis Coughlin II
Dana
Danae’ Board Bio
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Danielle – Classical Committee
Danielle – Florida
Darren
Dear Methia: ….
Derek
Diana
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First recipient of the CBS deficiency global grants program announced
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Harvey Levy
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HCU Awareness Month
HCU Champions Program
HCU Community Cook Book
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Henry
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Interview with Dr. Ken Maclean
Is it HCU?
Jacob
Jacob and Clara
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Jamela
James Weisfeld-Adams
Janet – California
Janet Thomas
Jessica’s Bio
Joanna Bio
Jordan
Joshua Baker
Josie from Ohio
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Judy’s & Susie’s Bios
Karen
Kelly
Key Patient Needs
KidZone
Kim Chapman
Kimberly Chapman, bio, and synopsis
Kraus Lab
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Kristin Board Bio
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Kristin’s Marathon Challenge
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Kyler
Landon from West Virginia
Leah – Alabama
Leo
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Lost Password
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Madison-NJ
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Marley – Texas
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Masen
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MTHFR and Remethylation Disorders Patient Stories
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Natural History Study of CBS Deficiency
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Patient-Focused Drug Development Meeting on Classical Homocystinuria (HCU)
Patrick Horn
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Remembering Jan Kraus
Remethylation Defects
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Research Funding Thermometers
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Rileigh
Ruby
Ruth
Samantha Canada
Samantha’s bio
Samantha’s Biography
Second recipient of the CBS deficiency global grants program announced
Severe MTHFR Publications
Severe MTHFR Steering Committee
Shane, Ky, Kaden
Sienna
Sienna-Classical-HCU
Special Edition Topics
Step 1: Is the Diagnoses Correct?
Step 2: What do I do next?
Step 3: Who Else Needs to Know About This?
Step 4: What Treatments are Available?
Step 5: How can I help Others With HCU or Related Disorders?
Summer
Summer Mini Series
Super View Photos
Survey on Homocystinuria Patients Missed by Newborn Screening
Synlogic ICIEM 2021 HCU Poster
Synlogic: Probiotic Enzyme
Syntis Bio: Enzyme Substitution Therapy
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Texas Family Picnic
Tom
Tome Bio: Gene Therapy
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Transition to Adulthood
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Travere Therapeutics: Enzyme Replacement Therapy
Valerie
Vicente
Victor
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Virtual Race
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Walla Al-Hertani
What Is HCU?
Will’s Bio –
HCU NBS Infographics
Newborn Screening Publications