HCU Network America

HCU and You: Tips and Advice

Pages

#GivingTuesday
2-Tier NBS Labs
2017 Donations
2018 Agenda
2018 Classical HCU Research Grant
2018 Conference
- 2018 Conference
2018 Conference Speakers
2018 Donations
2019 Classical HCU Research Grant
2019 Conference
2019 Conference Pictures
2019 Donations
2020 Donations
2021 Conference
2021 Donations
2022 Cbl C Research Grant
2022 Classical HCU Research Grant
2022 Conference
2022 Conference Pictures
2022 Donations
2022 Kids Zone
2022 Newborn Screening Grant
2023 Donations
Abby
About Us
Advocacy Webinar
Aeglea BioTherapeutics: Enzyme Replacement Therapy
Aimee
Alva
Amanda – Texas
Amazon Smile
Andrew
Angela Pipitone
Anna
Annette and Gig
Anniston from Mississippi
Annual Fundraising Thermometer
Art
Assistance Programs
Back to Care
Back to Care Authorization Agreement
Back to Care Mentor Program
Back to School Webinar
Back to School: Snacks and Meals
Barbara
Ben – Georgia
Benjamin Bio
Benjamin D. Goodlett
Bharatkumar bio
Blank Bio
Board and Advisors
Brittany
Calendar Page
Carson
Carson CblG
Casual for a Cause
Casual for a Cause: Motivate the Masses
Casual for a Cause: Playbook
Casual for a Cause: Team Captain
Charlotte’s Bio
Classical HCU
Classical HCU Expression of Interest
Classical HCU Research
- Classical HCU Global Grants Program
- Classical HCU Research Map
- Classical HCU Research Strategy
- Classical HCU Therapeutic Avenues
- Current Trials
Classical HCU Steering Committee
Classical Homocystinuria Publications
Classical Homocystinuria: A toolkit for managing Cystathionine Beta Synthase
Clinic Outreach
Cobalamin Defects
Cobalamin Patient Stories
- Cameron
- Mason
Cobalamin Related Publications
Cobalamin Steering Committee
Cobalamin Toolkits and Checklists
Codexis: Enzyme Substitution Therapy
Colbie & Cayle – Montana
Community Call
Community Calls
Community Forum
Company Matching
Conference Agenda
Conference Scholarship Application
Conferences
Connecting the Dots
Contact Register
Contact Us
Cooking With Cambrooke
Create an Account
Dana
Danae’ Board Bio
Danae’s Bio
Danielle – Classical Committee
Danielle – Florida
Dear Methia: ….
Derek
Diana
Donate
- iGive
- Send Check
Dr. Can Ficicioglu
Dr. Harvey Levy, bio and synopsis
Dr. Nicola Longo
E-Newsletters
Elizabeth
Ella from Michigan
Ellie from Pennsylvania
Elliott from South Carolina
Email 1
Email 2
Email 3
Email 4
eNews Sign Up
Esmee
Events
Executive Director Press Release
Find a Clinic
First recipient of the CBS deficiency global grants program announced
Formula and Medical Food Vendors
- Compounding Pharmacies
Forum Registration
Frequently Asked Questions (FAQ)
Fundraising
Fundraising Committee
Gabbi
Gallery
Garrett
Gavin and Zak
Grace
Grayson CblG
Guidelines for diagnosis and management
Hallie
Harvey Levy
HCU and You: Tips and Advice
HCU Awareness Month
HCU Community Cook Book
- Beverages
- Breads
- Breakfast
- Dessert
- Dinner
  - Mock Tuna Salad
- Low Protein Meal Plans
- Starters, Salads, Soups and Snacks
HCU Hero Award Nominations
HCU Heroes Participation Form
HCU Network America Brochure
Henry
Hidden
Home
Home
Homocystinuria Data Collection Program – Email contact
How to Donate
Inaugural Donations
Inaugural Donors
Infographic
Insurance Coverage
Insurance Webinar
Interview with Dr. Ken Maclean
Is it HCU?
Jacob
Jacob and Clara
Jake
Jamela
James Weisfeld-Adams
Janet Thomas
Jessica’s Bio
Joanna Bio
Jordan
Josie from Ohio
Juana
Judah
Judy’s & Susie’s Bios
Karen
Kelly
Key Patient Needs
KidZone
Kim Chapman
Kimberly Chapman, bio, and synopsis
Kraus Lab
Kraus Publications
Krista Viau
Kristin Board Bio
Kristin’s Bio – Maryland
Kristin’s Marathon Challenge
Kristina Cusmano-Ozog
Kyler
Landon from West Virginia
Leah – Alabama
Leo
Lindsey
Lost Password
Lydia
Maeve-Connecticut
Marcia Sellos-Moura
Margie McGlynn, Bio and Synopsis
Margie President Bio
Mark Lewis
Marzia Pasquali
Masen
Matthew CblC
Megan
Melanie
Merchandise
Mila
MTHFR and Remethylation Disorders Patient Stories
MTHFR Toolkits and Checklists
Nathan
Natural History Study of CBS Deficiency
Network Affiliations
Newborn Screening
- Newborn Screening Publications
Newborn Screening Advisory Committee
News & Events
Other metabolic organizations
Our Donors
Our Projects
Pam’s Bio
Patient Clinic Survey
Patient Stories
- Sarah
Patrick Horn
Peter
Peter Baker
Photo Albums
Photo Albums
Portfolio
Print Request Form
Privacy Policy & Disclaimer
Raidin
Recent Diagnoses
Register
Remembering Jan Kraus
Remethylation Defects
Remethylation Disorders Research
- Remethylation Disorder Therapeutic Avenues
- Remethylation Disorders Expression of Interest
- Remethylation Disorders Global Grants Program
- Remethylation Disorders Research Map
- Remethylation Disorders Research Strategy
Reports and Financials
Research & Trials
- About The Homocystinurias Data Collection Program
- Homocystinuria Biobank
- Homocystinurias Data Collection Program
Research Funding Thermometers
Research Labs
Resources
Rileigh
Ruby
Ruth
Samantha Canada
Samantha’s bio
Samantha’s Biography
Second recipient of the CBS deficiency global grants program announced
Severe MTHFR Publications
Severe MTHFR Steering Committee
Shane, Ky, Kaden
Sienna
Sienna-Classical-HCU
Special Edition Topics
Step 1: Is the Diagnoses Correct?
Step 2: What do I do next?
Step 3: Who Else Needs to Know About This?
Step 4: What Treatments are Available?
Step 5: How can I help Others With HCU or Related Disorders?
Summer
Summer Mini Series
Super View Photos
Survey on Homocystinuria Patients Missed by Newborn Screening
Synlogic ICIEM 2021 HCU Poster
Synlogic: Probiotic Enzyme
Texas Family Picnic
Tom
Toolkits and Checklist
Transition to Adulthood
- Milestones Assessment
- Tools and Resources
Travere Therapeutics: Enzyme Replacement Therapy
Valerie
Vicente
Videos
Virgil and Annie
Virtual Race
- Track the Race
What Is HCU?
Will’s Bio –