Bio
Brandon has lived most of his life in small towns in Wyoming and recently moved to Houston, Texas, with his wife Shandra, daughter Madyson, and son Mason. Six days after Mason was born, they found out through the newborn blood screening test that Mason had a metabolic disease, later confirmed to be Cobalamin C. Mason has the typical complications with Cobalamin C, including macular degeneration, but that doesn't stop him from living his best life! Mason is involved in the Miracle League (special needs baseball), Cub Scouts, and, most recently, Taekwondo!
"Adaptive Sports: Exercise and Athletics with HCU"
Can you maintain an active, athletic lifestyle while managing a rare metabolic disorder? In this engaging session, Brandon, Will, and Patrick sit down to discuss the realities of participating in sports with Homocystinuria (HCU). From the baseball field to the gym, the panel will share how they balance the physical demands of athletics with the strict requirements of a low-protein diet, specialized medical formula and obstacles such as low muscle tone and vision difficulties.
