HCU Network America
Toggle navigation
About Us
Board and Advisors
Classical HCU Steering Committee
Cobalamin Steering Committee
Severe MTHFR Steering Committee
Fundraising Committee
Key Patient Needs
Patient Stories
Cobalamin Patient Stories
MTHFR and Remethylation Disorders Patient Stories
Network Affiliations
HCU Network America Brochure
Contact Us
What Is HCU?
Classical HCU
Classical HCU Infographic
Remethylation Disorders
Cobalamin Defects
Cobalamin Cofactor Infographic
Resources
Is it HCU?
Find a Clinic
Clinic Outreach
Patient Clinic Survey
Recent Diagnoses
Classical HCU (CBS Deficiency) Toolkit
New Family Diagnosis Guide for Cobalamin Disorders
Guidelines for diagnosis and management
Transition to Adulthood
Back to Care
Formula and Medical Food Vendors
Compounding Pharmacies
Assistance Programs
Insurance Coverage
Low Protein Foods Assistance Fund
Toolkits and Checklist
Print Request Form
HCU Community Cook Book
Beverages
Breakfast
Breads
Starters, Salads, Soups and Snacks
Dinner
Dessert
Videos
Other metabolic organizations
Research & Trials
Classical HCU Research
Remethylation Disorders Research
Newborn Screening
Homocystinurias Data Collection Program
Homocystinuria Biobank
Research Funding Thermometers
News & Events
Events
Conferences
Virtual Race
HCU Awareness Month
#GivingTuesday
E-Newsletters
Dear Methia: ….
Connecting the Dots
Special Edition Topics
HC&U: A Homocystinuria Podcast
Fundraising
Casual for a Cause
Virtual Race
#GivingTuesday
Contact Register
Donate
How to Donate
Our Donors
Reports and Financials
Fundraising Committee
Merchandise
MTHFR and Remethylation Disorders Patient Stories
Home
MTHFR and Remethylation Disorders Patient Stories
Patient Stories: Classical Homocystinuria
Patient Stories: Cobalamin Disorders
Patient Stories: Severe MTHFR
Severe MTHFR Patient Stories
Amy- New York (MTHFR)
Click here to read her bio
Carson - Florida (MTHFR)
Click here to read her bio
Leo - Florida (MTHFR)
Click here to read his bio
Sign up here to keep up to date with events, newsletters, and more!
