Ruth

A woman in a business suit smiling.

 

Ruth is a wife to Dan and mother to four children.  They live in Cincinnati.  Ruth & Dan's third child, Josie, has HCU.  She was diagnosed while in kindergarten.  While initially shocked, Ruth diligently read every medical article she could on HCU and listened to every available lecture.  Ruth & Dan manage their daughter's diagnosis by tracking every gram of protein and her medication on a spreadsheet every day.   Through the metabolic clinic in the genetics division of Cincinnati Children's Hospital, Ruth was referred to HCU Network America.    By serving and supporting HCU Network America, Ruth hopes to help other parents navigate the many aspects of the diagnosis of their child.  She also supports efforts for more accurate newborn screening.  In addition, Ruth is an adoption attorney and advocates for foster children and adoption in general.


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