Our purpose!

What is HCU?

The Homocystinurias are a group of inherited metabolic disorders leading to the build up of homocysteine and its metabolites in the blood and urine. 

Our Mission

HCU Network America strives to inform and provide resources for patients and families, create connections, influence state and federal policy, and support advancement of diagnosis and treatment for HCU and related disorders.

Meet our board

In 2016, Danae' Bartke, Margie McGlynn, and Kristin Rapp came together to found HCU Network America. 

News and Events