HCU Network America

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#GivingTuesday
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2017 Donations
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2018 Conference
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2019 Conference
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2021 Conference
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2022 Conference
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2022 Kids Zone
Abby
About Us
Advocacy Webinar
Aeglea BioTherapeutics: Enzyme Replacement Therapy
Aimee
Amanda – Texas
Amazon Smile
Andrew
Angela Pipitone
Anna
Annette and Gig
Anniston from Mississippi
Annual Fundraising Thermometer
Art
Assistance Programs
Back to Care
Back to Care Authorization Agreement
Back to Care Mentor Program
Back to School Webinar
Back to School: Snacks and Meals
Barbara
Ben – Georgia
Benjamin Bio
Benjamin D. Goodlett
Bharatkumar bio
Blank Bio
Board and Advisors
Brittany
Calendar Page
Carson
Carson CblG
Casual for a Cause
Casual for a Cause: Motivate the Masses
Casual for a Cause: Playbook
Casual for a Cause: Team Captain
Charlotte’s Bio
Classical HCU
Classical Homocystinuria: A toolkit for managing Cystathionine Beta Synthase
Clinic Outreach
Cobalamin Defects
Cobalamin Patient Stories
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Cobalamin Steering Committee
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Codexis: Enzyme Substitution Therapy
Colbie & Cayle – Montana
Cole
Community Call
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Company Matching
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Connecting the Dots
Contact Register
Contact Us
Cooking With Cambrooke
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Danae’ Board Bio
Danae’s Bio
Danielle – Florida
Dear Methia: ….
Derek
Diana
Donate
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Dr. Can Ficicioglu
Dr. Harvey Levy, bio and synopsis
Dr. Nicola Longo
E-Newsletters
Elizabeth
Ella from Michigan
Ellie from Pennsylvania
Elliott from South Carolina
Email 1
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Esmee
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Find a Clinic
First recipient of the CBS deficiency global grants program announced
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Fundraising
Fundraising Committee
Gabbi
Gallery
Garrett
Gavin and Zak
Grace
Grayson CblG
Guidelines for diagnosis and management
Hallie
Harvey Levy
HCU and You: Tips and Advice
HCU Awareness Month
HCU Community Cook Book
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HCU Network America Brochure
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Homocystinuria Data Collection Program – Email contact
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Interview with Dr. Ken Maclean
Is it HCU?
Jacob and Clara
Jake
Jamela
James Weisfeld-Adams
Janet Thomas
Janette
Jessica’s Bio
Joann Bio
Josie from Ohio
Judah
Judy’s & Susie’s Bios
Karen
Kelly
Key Patient Needs
KidZone
Kim Chapman
Kimberly Chapman, bio, and synopsis
Kraus Lab
Kraus Publications
Krista Viau
Kristin Board Bio
Kristin’s Bio – Maryland
Kristin’s Marathon Challenge
Kristina Cusmano-Ozog
Kyler
Landon from West Virginia
Laurie
Leah – Alabama
Leo
Lindsey
Lost Password
Lydia
Maeve-Connecticut
Marcia Sellos-Moura
Margie McGlynn, Bio and Synopsis
Margie President Bio
Mark Lewis
Marzia Pasquali
Masen
Matthew CblC
Megan
Merchandise
MTHFR and Remethylation Disorders Patient Stories
MTHFR Toolkits and Checklists
Nathan
Natural History Study of CBS Deficiency
Network Affiliations
Newborn Screening
Newborn Screening Advisory Committee
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Other metabolic organizations
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Pam’s Bio
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Patrick Horn
Peter
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Remembering Jan Kraus
Remethylation Defects
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Research Funding Thermometers
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Rileigh
Ruby
Ruth
Samantha Canada
Samantha’s bio
Samantha’s Biography
Sarah
Scientific Advisory Board
Second recipient of the CBS deficiency global grants program announced
Severe MTHFR Publications
Severe MTHFR Steering Committee
Shane, Ky, Kaden
Sienna
Special Edition Topics
Step 1: Is the Diagnoses Correct?
Step 2: What do I do next?
Step 3: Who Else Needs to Know About This?
Step 4: What Treatments are Available?
Step 5: How can I help Others With HCU or Related Disorders?
Summer
Summer Mini Series
Super View Photos
Survey on Homocystinuria Patients Missed by Newborn Screening
Synlogic ICIEM 2021 HCU Poster
Synlogic: Probiotic Enzyme
Texas Family Picnic
Therapeutic Avenues
Tom
Toolkits and Checklist
Transition to Adulthood
- Milestones Assessment
Travere Therapeutics: Enzyme Replacement Therapy
Valerie
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Virgil and Annie
Virtual Race
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What Is HCU?
Will’s Bio –