The mission of HCU Network America is to help patients with HCU and related disorders manage their disease and to find a cure.
To support research to improve diagnosis and treatment including a cure for the disease
To provide information and resources to better manage the disease
· HCU treatment and dietary approaches
· General disease management
· Increased access for treatments and supplements
· Research findings and opportunities for clinical trials
To create connections across the community and facilitate sharing of information and best practices through in-person and virtual events and discussions
To assure all patients are diagnosed as early and efficiently as possible to enable access to care and avoid complications.