Remethylation Disorders Research Grants
HCU Network America provides grants to researchers to support the key priorities identified via our research strategy. These grants are primarily administered via a global grants process that is a collaborative effort with HCU Network Australia, though in selected cases grants may be done solely through HCU Network America or with other patient groups.
Grants Process
Calls for Expression of Interest (EOI) are issued on a periodic basis and are communicated through relevant organizations and posted on our website.
EOI:
- Researchers are asked to submit an Expression of Interest (EOI) Application, not exceeding 2 pages, including a high-level description of the proposed project, potential budget range, and any conflict of interests with SAB members. EOIs are reviewed by the Global Scientific Advisory Board (SAB) and applicants are notified whether they are invited to submit a full Grant Application.
- Grant Applications are reviewed and scored by the SAB and by at least 2 independent reviewers who are considered experts in the specific scientific approach being recommended. Based on these evaluations, the SAB then recommends which proposal(s) are recommended for funding and the HCU Networks then make the final decision based on available funding.
- Most grants are awarded at the level of USD $50,000, though exceptions can be made depending on the specific project. Researchers must agree to submit an interim project update halfway through the grant period (which is usually 6-12 months), and a final report at the end of the project. Awardees may also be asked to present results to the SAB and/or to the patient community at periodic meetings or webinars.
Global Scientific Advisory Board
Peter Baker (Chair), MD. Clinical Biochemical Genetics, Pediatrics. Colorado Children's Hospital. Read Dr. Baker's bio
Sean Froese, PD. Principle Investigator, Division of Metabolism, University Children’s Hospital Zurich, Switzerland. Read his bio
Walla Al-Hertaini, MD, MS, FRCPC, FCCMG, FACMG. Boston Children’s Hospital. Assistant Director, Metabolism Program. Attending Physician, Division of Genetics and Genomics. Read her bio
Manuel Schiff. Assistance Publique Hospitaux de Paris-University Hospital Robert-Debra, France. Associate professor of Pediatrics. Head of the Reference Centre for Inborn Errors of Metabolism. Read his bio
David Rosenblatt, MD. McGill University. Dodd Q. Chu and Family Chair in Medical Genetics Professor, Departments of Human Genetics, Medicine, Pediatrics and Biology. Read his bio
Kimberly Chapman, MD, Ph.D., attending physician in Genetics and Metabolism, Children’s National: Assistant Professor of Pediatrics and Integrated Systems Biology, George Washington University, U.S. Read her bio
Nicola Longo, MD PhD. University of Utah.Professor of Pediatrics and Chief Division of Medical Genetics. Read his bio
Patient Representatives:
· Brittany Parke. HCU Network of America, Research Coordinator
· Dana Hunt. HCU Network of America, Cobalamin Steering Committee Member
· Grace Talbert. HCU Network America, Severe MTHFR Committee Chair
· Renske Dijkhuis. HCU Network of Australia, Patient Representative
