Key Patient Needs
There are many unmet needs for patients and family members affected by HCU and related disorders. In addition to the need for better treatments, easier to follow diets and improved metabolic supplements, better information is needed on the disease, how to manage it and how to address the consequences. Patients and families also want to connect with one another to share information and best practices on living with on living with HCU. A patient support group, HCU Network America, is being formed to address these needs.