Bio

Alexis is the dedicated sister to Grayson and Drew, both individuals with cblG. She learned at a young age the importance of early diagnosis, as she was only 5 years old when her brother Drew died following suffering serious complications related to his diagnosis...or lack thereof. Fast forward 12 years, she witnessed the preparation her family made to prepare for another child diagnosed with cblG. Given their previous experience, they prepared for the worst, but were blessed with the best outcome possible. Grayson is now 7 and thriving. Alexis and Grayson have a very special bond, which has also driven her to obtain an education in nursing.