Bio
Ethan is the elder brother of Carson, who was diagnosed with Cobalamin G after a long diagnostic odyssey. Ethan is actively involved in the rare for research each year raising thousands for cblG research.
"Sibling: It's a Family Affair"
What does life look like when Homocystinuria (HCU) becomes a part of your daily family rhythm? In this intimate panel session, Ethan, June, and Holly share their firsthand experiences navigating the complexities of supporting a loved one with HCU. From the initial shock of diagnosis and the steep learning curve of a low-methionine diet to the emotional weight of managing long-term health risks like blood clots and vision changes, this talk offers a window into the reality of the HCU journey.
