Back to Care
HCU Network America Resources and Expert Articles and Resources
Back to Care Webpage
Back to Care Guide
Back to Care Mentor Program
Personal Experiences
Back to Care, by Danae' Bartke
Back to School
HCU Network America Resources and Expert Articles and Resources
Caretakers Guide for Classical HCU
Educators Guide to Classical HCU
Educators Guide to MMA with HCU
Educators Guide to Methylcobalamin Disorders
Educators Guide to Severe MTHFR
College Guide to Classical HCU
Self Management Timeline for Classical HCU
Cambrooke: School Lunch Program: Parents Guide
Cambrooke: School Lunch Program: Food Services Guide Summary
Cambrooke: School Lunch Program: Food Services Guide
Ask Methia: How do I make school lunches more exciting?
Recipes from the Kitchen: Back to School Edition
Back to School: Low Protein Community Chat (Webinar)
Back to School with HCU: Working with your child's teachers, school nurse and caregivers (webinar)
Personal Experiences
Navigating School with HCU: An Elementary Experience
Navigating School with HCU: A College Experience
Additional Resources:
The Pediatric Epilepsy Surgery Alliance: Free Navigating the IEP Process Course
Balancing Life and HCU
HCU Network America Resources and Expert Articles and Resources
Balancing Life and HCU
Additional Resources
Eurordis: Juggling Care and Daily Life: The Balancing Act of the Rare Disease Community (Infographic)
Eurodis: Rare Barometer: Juggling care and daily life: The balancing act of the rare disease community: A Rare Barometer survey
Building Awareness
HCU Network America Resources
FDA Listening Session Summary for Cystathionine Beta Synthase Deficient Homocystinuria (HCU)
Personal Experiences:
An Interview with Alex Orange Drink
Family Planning
Expert Articles and Resources
Family Planning with Homocystinuria by Katie Sapp, MS, CGC
Genetics of Homocystinuria and Screening for Family Members, presented by Katie Sapp (2019 Conference Presentation)
Ask Methia
Personal Experiences
Personal Experience with Pregnancy and Classical HCU, by Danae' Bartke
Video: Maebh's Maternal HCU Story
Fitness and HCU
HCU Network America Resources
Ask Methia: Sports and HCU, What's the Big Deal?
Personal Experiences:
Marathon Training with HCU, by Kristin Rapp
How to Hike (with HCU), by Benjamin Lewis
Navigating Your Career with HCU
HCU Network America Resources and Expert Articles and Resources
Navigating Your Career with HCU: Tips to Success
Personal Experiences
Navigating Your Career with HCU: A Personal Experience Story by Danae' Bartke
Additional Resources
Rare Revolution Magazine: Top Tips for Rare Employees
Global Genes Presentation: Crafting a Career: Making a Fulfilling Professional Life with a Rare Disease
Traveling with HCU
HCU Network America Resources
Ask Methia: Leaving on a Jet Plane, and the Panic is Setting in!
Personal Experiences:
Traveling with Classical HCU, by Danielle B.
Traveling with Cobalamin C, an Interview with Adam Settle
Additional Resources:
Nutricia: Dining out Guide for PKU
