For non-b6 responsive classical homocystinuria, patients are prescribed a low-protein diet and medical formula. Following the treatment is critical for reducing risks associated with classical HCU.
Below is a list of formula companies, the classical HCU formulas, and the assistance programs of their specific formula.
Dietary Formula
Abbott Nutrition metabolic medical foods are designed to help meet the specialized nutrient needs of patients who have an inherited metabolic disorder. The formulation and nutrient composition of our metabolic medical foods are based on clinical research findings and recognized nutrient needs for growth and maintenance of nutrition status for infants, toddlers, children, and adults.
HCU formulas currently available:
Abbott Pathway Reimbursement Support (Formula)
Whether you are a provider or a patient, Abbott Nutrition is committed to helping patients gain better access to Abbott Nutrition products. That's why we offer PATHWAY, a program that provides resources and support to help patients and providers with their reimbursement questions.
Dietary Formula and low protein foods
Founded in 2000, Cambrooke Therapeutics recognizes the critical nature of managing serious medical disorders through medically based nutrition therapies. For people with serious unmet medical nutrition needs, it is a daily challenge to find flavorful, easy options that can sustain their diets and maintain their nutritional needs.
Cambrooke Care (Food and Formula) support
Cambrooke offers assistance with formula and food reimbursement, patient financial assistance, and help with co-pays.
Medical Nutrition
Nexus offers a variety of innovative medical foods, for use in the dietary management of metabolic disorders.
Formulas are available for disorders such as Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD), Homocystinuria (HCU) and Tyrosinemia (TYR) as well as Urea Cycle Disorder (UCD).
Dietary Formula
For more than 50 years, Mead Johnson has been a pioneer in the field of specialized nutrition for inborn errors of metabolism. Today, the company commercializes several metabolic formulas designed for the dietary management of specific conditions, including phenylketonuria, maple syrup urine disease and homocystinuria, among others.
Dietary Formula
Nutricia is a global health company that leads the development and use of advanced medical nutrition for specialized care.
Nutricia Navigator (Formula)
Nutricia has a team of coverage specialists that will guide you from start to finish through the medical nutrition coverage and reimbursement process.
Low protein foods
PKU Perspectives was formed to share with all PKU families and those on low protein diets, the convenience foods we have learned to enjoy. After preparing meals for two PKU children of our own and an adopted handicapped grandchild with PKU for more than thirty years, we have discovered that convenience is most appreciated when you must prepare two meals at a time. PKU Perspectives is a for profit company. We employ many individuals who have a deep interest in providing products for special dietary needs.
Our products are very specialized in that they are not mass produced. As with any industry, there are price increases with raw goods and products. We have kept our prices as low as possible. We have had issues with product availability and delayed shipping in the past that was due to unfortunate circumstances that were out of our control. We appreciated our loyal customers who have been patient with us during this difficult time. All of our products are readily available now and orders are being shipped out within a timely manner. We look forward to offering new low protein products that will be available soon!
We work with many different types of customers. Retail, Cash, Credit Card, Paypal, your insurance program, state programs and many others. Many of our customer's do not have access to readily available low protein products that may be more conveniently located near you. We offer these products to our customers as a service. As we are a small company we do not have access to competitive big box pricing. We make a very small marginal profit off of these items. Shipping such dry and cold items do add a cost to having these products readily available. You may find these products available closer to you and prices better suited to your budget and we encourage you to take advantage of that.
Medical Food
Solace Nutrition prides itself on its main reason for existence – the advancement of disease management through nutrition. Our products are designed by healthcare professionals specialized in the area of disease for which our products are intended. Our team is consistently developing scientifically proven products that fill the unmet need of the many people struggling with inborn errors of metabolism and chronic disease management. Our products are in concentrated & convenient forms using only safe, clinically-validated ingredients that are manufactured in FDA registered & audited facilities.
Low protein foods
Dietary Formula
For over 20 years, Vitaflo® has been at the forefront of developing innovative specialized clinical nutrition products for Inborn Errors of Metabolism (IEM), nutrition support and disease specific conditions such as renal disease.
Our dedicated experts have over 30 years’ experience in producing specialist nutritional products. Working in partnership with world key opinion leaders and patients, Vitaflo’s aim is to create products that combine the best of cutting edge research with the lifestyle demands of modern living, ensuring the most acceptable products are available for the patient.
Vitaflo Formula 4 Success (Formula)
Formula 4 Success is a personalized support program that helps dieticians and their patients and caregivers save time, reduce costs, and streamline the process for receiving the Vitaflo products that they need.
Dietary Formula and low-protein medical foods
For over two decades, Zoia Pharma has stood at the forefront of providing exceptional service to individuals diagnosed with Inborn Errors of Metabolism (IEMs) and other rare metabolic conditions, supplying a broad portfolio of medical foods and nutritional products. We specialize in navigating the complexities of healthcare, ensuring patients gain access to necessary dietary formula and low protein medical foods without the financial strain. In partnership with healthcare professionals and insurers, we provide targeted nutritional solutions, while also streamlining the insurance process.
Accredited by the Healthcare Quality Association on Accreditation (HQAA), we adhere to stringent standards, helping our patients experience transformative outcomes. Our portfolio is curated to foster advancements in disease management, harnessing the power of nutrition.
