Bio
Brittany Parke is the mother of two boys born with Cobalamin G. Sadly, Drew passed away in 2011 due to complications related to delayed diagnosis. Grayson was born in 2019 and treated since birth, giving him a chance to thrive. Brittany serves as vice president of the board and is the research coordinator. She oversees the Homocystinuria Data Collection Program through RARE-X. She has presented at 5 professional conferences around the globe, authored 7 scientific abstracts and has a recently published scientific article in Molecular Genetics and Metabolism Reports.
"Preimplantation Genetic Diagnosis (PGD) IVF: Family Planning"
Building a family is a journey of hope, but when a rare disease is part of the story, that journey often includes a complex landscape of uncertainty and difficult decisions. In this session, Karen, Krista, Valerie, and Brittany share their deeply personal and professional perspectives on navigating the challenges of family building when a genetic or rare condition is involved. This panel will explore the "diagnostic odyssey" many families face and the emotional, financial and relational strains it places on parents and siblings alike. Drawing from their own experiences and expertise.
