Online meet-ups are an opportunity to connect with patients and caregivers impacted by cobalamin disorders with elevations of homocysteine to one another virtually.
If you are a medical professional or industry representative looking to attend, please contact HCU Network America to seek advanced approval.
If you are a healthcare professional, or industry representative, please email HCU Network America for preapproval to attend.
Whether your child is 5 months old or 25 years old parents, grandparents and caregivers of those with HCU need support! Come join us networking, tips, tricks and conversation.
If you are a healthcare professiona, or industry representative, you need to be granted permission to attend in advanced. Please reach out to HCU Network America before registering.
Whether your child is 5 months old or 25 years old parents, grandparents and caregivers of those with HCU need support! Come join us networking, tips, tricks and conversation.
Come join us for our Classical HCU Community Meetup
Come join us for our Classical HCU Community Meetup
HCU Network America, Organic Acidemia Association and Propionic Acidemia Foundation are excited to co-host the Land of the Free, Home of the Brave, 2022 HCU Network America, OAA and PAF Family Conference. This year’s joint conference will be held on June 25-26th, at the Marriott Bethesda, in Bethesda, MD. This event provides an opportunity for affected individuals, families and professionals to come together, share the most current information in research, medical care and family connections and support needed as they live day-to-day managing these rare metabolic disorders.
All attendees must be fully vaccinated as defined by the CDC at the time of the conference. Children under 5 will need to present a negative PCR dated no more than 3 days prior to conference, unless vaccine becomes available. If you are unsure if you are considered fully vaccinated, you can visit this page: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/fully-vaccinated.html
The hotel requires all guest ages 2+ to wear a mask covering both their nose and mouth at all times while in the conference and public areas of the hotel.Hotel reservations can be made by utilizing the following link: Marriott Bethesda Reservation Link
To receive up to date 2022 Confernce information, please join the conference Facebook page at the following link 2022 HCU & OAA Conference Facebook group
If you have any registration questions or concerns please contact Erin MacLean, 2022 Registration coordinator at [email protected].
We look forward to seeing you in Bethseda!!!
Liability
COVID-19 SAFETY INFORMATION: While participating in events held or sponsored by the HCU Network America, Organic Acidemia Association and Propionic Acidemia Foundation, (“The Organizations”), consistent with CDC guidelines, participants must practice hand hygiene, “social distancing” and wear face coverings to reduce the risks of exposure to COVID-19. Because COVID-19 is extremely contagious and is spread mainly from person-to-person contact, The Organizations have put in place preventative measures to reduce the spread of COVID-19. However, The Organizations, cannot guarantee that its participants, volunteers, partners, or others in attendance will not become infected with COVID-19. In light of the ongoing spread of COVID-19, individuals who fall within any of the categories below should not engage in The Organizations events and/or other face to face activities. By attending the Land of the Free, Home of the Brave Conference (the “Event”)., you certify that you will not attend if you fall into any of the following categories: **Individuals who currently or within the past fourteen (14) days have experienced any symptoms associated with COVID-19, which include fever, cough, and shortness of breath among others.” Individuals who believe that they may have been exposed to a confirmed or suspected case of COVID-19 or have been diagnosed with COVID-19 and are not yet cleared as non-contagious by state or local public health authorities or the health care team responsible for their treatment.
DUTY TO SELF-MONITOR: Participants and volunteers agree to self-monitor for signs and symptoms of COVID-19 (symptoms typically include fever, cough, and shortness of breath) and, contact The Organizations at [email protected], [email protected], and [email protected] if he/she experiences symptoms of COVID-19 within 14 days after participating in the Event.
CDC Domestic Travel Link:
https://www.cdc.gov/coronavirus/2019-ncov/travelers/travel-during-covid19.html
