Spring Low Protein Cooking Class
Join HCU Network America and Chef Amber as she demonstrates to us easy low-protein dishes! All low-protein patients are welcome!
Archives
- February 24, 2023
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- February 9, 2023
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Heart and Blood Vessels with the Homocystinurias – Panel perspectives
Join Misty, Christa, Danae’ and Samantha as they discuss heart and blood vessel issues they’ve faced while living with HCU.
From high blood pressure to cardiac arrest, patients with various types of homocystinuria experience a wide range of heart and blood vessel issues. While some of these issues are better documented, other aspects aren’t.
Come join three adults with classical HCU, Christa, Danae’, and Samantha, along with the parent of an adult with Cobalamin C, Misty as we dive into their experiences with heart and blood vessel issues they and their children have faced.
- February 9, 2023
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HCU Network America Presents, Global Clinical Trial Live Q&A with Aeglea
Come join HCU Network America for a Global Clinical Trial Live Q&A with Dr. Linda Neuman of Aeglea.
- February 1, 2023
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Cobalamin Disorders with Homocystinuria Meetup
Meet-ups are an opportunity to connect patients and caregivers impacted by cobalamin disorders with elevations of homocysteine.
- January 5, 2023
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Classical HCU Parent-Caregiver Meetup
Classical HCU Parent-Caregiver Meetup
Parents, Grandparents, and Caregivers of “kids” of all ages with classical HCU need support too!
- January 5, 2023
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Classical HCU Patient Virtual Meet-up
Meet-ups are an opportunity for patients impacted by classical homocystinuria to connect with one another virtually.
- November 9, 2022
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Oral Health with the Homocystinurias – Panel perspectives
Join Ashlee, Brooklyn, and Danae’ as they discuss oral health issues they’ve faced while living with HCU.
- November 1, 2022
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Fall Low Protein Cooking Class
Join HCU Network America and Chef Amber as she demonstrates for us 3 quick and easy low protein dishes! All low protein patients welcome!
- September 30, 2022
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How the Rare-X Homocystinurias Data Collection Program Could Drive Standard
Come here how the Rare X Homocystinurias Data Collection Program Could Drive Improved Standards of Care
- September 30, 2022
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What are the Homocystinurias? A Panel Perspective
Come hear from our panel about their experiences living with the Homocystinurias!
