HCU Network America
Toggle navigation
What Is HCU?
Classical HCU
Classical HCU Infographic
Remethylation Disorders
Cobalamin Defects
Cobalamin Cofactor Infographic
Research & Trials
Classical HCU Research
Remethylation Disorders Research
Homocystinurias Data Collection Program
Homocystinuria Biobank
Research Funding Thermometers
Newborn Screening
Resources
Is it HCU?
Know the Difference: Homocystinuria Versus Hyper-Homocystinemia.
Find a Clinic
Clinic Outreach
Patient Clinic Survey
Recent Diagnoses
Classical HCU (CBS Deficiency) Toolkit
New Family Diagnosis Guide for Cobalamin Disorders
Guidelines for diagnosis and management
Transition to Adulthood
Back to Care
Formula and Medical Food Vendors
Compounding Pharmacies
Assistance Programs
Insurance Coverage
Low Protein Foods Assistance Fund
Toolkits and Checklist
Print Request Form
HCU Community Cook Book
Beverages
Breakfast
Breads
Starters, Salads, Soups and Snacks
Dinner
Dessert
Videos
Other metabolic organizations
News & Events
Events
Conferences
Virtual Race
HCU Awareness Month
#GivingTuesday
E-Newsletters
Dear Methia: ….
Connecting the Dots
Special Edition Topics
HC&U: A Homocystinuria Podcast
Fundraising
Casual for a Cause
Virtual Race
#GivingTuesday
Contact Register
About Us
Board and Advisors
Fundraising Committee
Key Patient Needs
Patient Stories
Cobalamin Patient Stories
MTHFR and Remethylation Disorders Patient Stories
Network Affiliations
HCU Network America Brochure
Contact Us
Donate
How to Donate
Reports and Financials
Fundraising Committee
Merchandise
Medications & Medical Nutrition
Home
Transition to Adulthood
Tools and Resources
Medications & Medical Nutrition
C: I have a general understanding of what foods are safe for me to eat.
C: I can read a nutrition label.
C: I can make an accurate estimate of foods without a nutrition label.
Collapsed Sample Description
C: I can accurately track my protein intake for the day.
C: I can make my medical formula.
C: I can remember to take my medical formula.
C: I can find good food choices when I am away from home.
Cbl: I allow my caregivers to give me my injection.
Cbl: I know what supplies are needed to get my injection.
A: I can sort and remember to take my prescriptions and other medications.
A: I know the names of my medications, medical formula and foods, and I understand what they do.
A: I can order my prescriptions.
A: I know how my medications need to be stored.
A: I can use and take care of my own medical equipment and supplies.
C: I can order my low-protein foods.
C: I can order my medical formula.
C: I can cook meals appropriate for my dietary needs.
Cbl: I know how to prepare my injection.
A: I remember to refill my prescriptions and get my other medications before they run out.
C: I remember to order more medical formula before I run out.
C: I can plan meals for the week that are appropriate to my dietary needs.
Cbl: I can give myself an injection.
Sign up here to keep up to date with events, newsletters, and more!