Responsibilities of the Scientific Advisory Board

Scientific Advisory Board

A scientific Advisory Board has been convened to advise the HCU Networks on key priorities and guide which specific projects should be funded.

The current members of the Scientific Advisory Board inlcude:

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Professor Viktor Kožich, (Chair of SAB); MD, PhD, Professor of Medical Genetics and Head of Institute of Inherited Metabolic Disorders, General University Hospital in Prague and Charles University-First Faculty of Medicine, Prague, Czech Republic.  Read Professor Kožich’s bio

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Professor Bridget Wilcken AM, MD, FRACP, FRCPA (hon), FHGSA, emeritus consultant at the Children’s Hospital, Westmead, Sydney; part-time metabolic physician, Sydney Children’s Hospital, Australia. Read Professor Wilcken's bio

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Professor Matthias R. Baumgartner, Prof. Dr. med., head of Division for Metabolic Diseases und Medical Director of the Swiss Newborn Screening Program, Kinderspital, Zürich, Switzerland. Read Professor Baumgartner's bio

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Professor Henk Blom, PhD, Head of laboratory for Clinical Biochemistry and Metabolism, Department of General Pediatrics, Canter for Pediatrics and Adolescent Medicine, University Hospital Freiburg, Germany. Read Professor Blom's bio

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Professor Jan Kraus, Ph. D, Professor Pediatrics / Cell and Developmental Biology, University at Colorado U.S. Read Professor Kraus' bio

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Professor Warren Kruger, Ph. D, Full professor, Cancer Biology program at Fox Chase Cancer Center, Philadelphia, PA, U.S. Read Professor Kruger's bio

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Dr Andrew Morris, MD, Consultant and Senior Lecturer in Paediatric Metabolic Medicine. Willink Metabolic Unit, Central Manchester University Hospital, UK.      Read Dr. Morris' bio 

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Dr Kimberly Chapman, MD, Ph.D., attending physician in Genetics and Metabolism, Children’s National: Assistant Professor of Pediatrics and Integrated Systems Biology, George Washington University, U.S. Read Dr. Chapman's bio

Patient Representatives:

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Tara Morrison, BA LLB, Director & Chair, HCU Network Australia

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Margaret McGlynn, R. Ph., Ph. D. (hon), President of Board, HCU Network America

Responsibilities of the Scientific Advisory Board

The responsibilities of the Scientific Advisory Board include :

  • Work with HCU Network Australia and HCU Network America (HCUNAs) (and other patient groups interested in funding grants) to develop research strategy and identify key priorities for funding.
  • Provide non-binding but informed guidance on matters specific to HCUNAs research and funding strategies, including opportunities for new programs or clinical trials.
  • Provide peer review for applications submitted to HCUNAs for funding and provide recommendations on specific projects to be funded.
  • Support any grant applications submitted by HCUNAs to other funding bodies.
  • Participate in periodic reviews of HCUNAs Research Strategy.

Download a copy of the Scientific Advisory Board’s Terms of Reference.