Copay and Premium Assistance
Each year, more and more Americans are being forced to choose between paying for life-saving treatments and paying for basic necessities like food, housing and utilities – decisions no one should have to make. When people in these circumstances need help, many of them turn to the HealthWell Foundation®. Founded in 2003, the HealthWell Foundation is an independent, non-profit organization that provides financial assistance to insured patients living with chronic and life-altering illnesses to help them afford their medical treatments.
Cystadane
AnovoRx
AnovoRx is the sole US distributor of Cystadane. Please contact Anovo Rx if you are uninsured or having trouble paying for Cystadane. Anovo can help identify programs that may be able to assist you.
Need to contact AnovoRx? Call: (888) 487-4703
Need help with an appeal? Visit the appeal section of the Cystdane website and download the form.
Betaine (Generic)
Generic betaine is FDA approved. There are currently two generic forms of Betaine available. All generic forms of betaine still currently are dispensed through a specialty pharmacy, just like Cystadane. All forms of betaine and Cystadane require a script from your provider.
- Eton Pharmaceuticals
- Eton Pharmaceuticals dispenses through Optime Care
- Need to contact Optime? 1-888-673-0039 or email etoncares@optimecare.com
- Cosette Pharmaceuticals
- Cosette Pharmaceuticals dispenses through the following specialty pharmacies
Patients getting Betaine Generic through their retail pharmacy should check with their individual pharmacy for any coupons to help pay towards their co-pay.
Food and Formula Coverage
NORD HCU Assistance Fund (Food and Formula - HCU Network America Sponsored)
NORD's Classical HCU Medical Assistance Program offers eligible individuals diagnosed with Classical Homocystinuria financial support to pay for the low protein foods and provider prescribed medical formula necessary in managing this HCU diagnosis.
Abbott Pathway Reimbursement Support (Formula)
Whether you are a provider or a patient, Abbott Nutrition is committed to helping patients gain better access to Abbott Nutrition products. That's why we offer PATHWAY, a program that provides resources and support to help patients and providers with their reimbursement questions.
Cambrooke Care (Food and Formula)
Cambrooke offers assistance with formula and food reimbursement, patient financial assistance, and help with co-pays.
Mead-Johnson (Formula)
While Mead-Johnson does not have a direct assistance program, they do offer HCPCS Codes and Reimbursement Codes which may assist in getting coverage for their products.
Nutricia Navigator (Formula)
Nutricia has a team of coverage specialists that will guide you from start to finish through the medical nutrition coverage and reimbursement process.
Vitaflo Formula 4 Success (Formula)
Formula 4 Success is a personalized support program that helps dieticians and their patients and caregivers save time, reduce costs, and streamline the process for receiving the Vitaflo products that they need.
Neurology Social Services Network (NSSN) powered by Unite Us.
HCU Network America has partnered with the NSSN to provide more opportunities to help provide holistic care to patients struggling to access resources and programs.
The Neurology Social Services Network (NSSN) was launched by CNF in 2022 to help patient advocacy organizations refer families to local service organizations to address social determinants of health. Some examples of services for families include access to food shelves, transportation assistance, and housing assistance. The program also tracks the outcomes of those referrals, measures the impact of organizational programs, and collaboratively aggregates data about how patient advocacy organizations are making an impact.
Please complete the form below for additional resource assistance.