Events

2025 HCU Meetup Events Banner

Come check out our Virtual Homocystinuria Meet-up!

Join our virtual meet-up to learn about our work and our mission and to meet, connect, and learn from other patients and caregivers facing similar challenges. Whether it's navigating diet adherence issues, insurance, clinic visits, or life transitions, you are not alone. Space is limited, so register early! Once registered, you will receive additional details about accessing the meet-up.

Please reach out to HCU Network America at info@hcunetworkamerica.org for further questions.

Look for more information on:

  • Rare Disease Week (Everylife Foundation)
  • Rare Disease Day - February 28, 2028
  • World HCU Awareness Day (WHAD) - May 18
  • HCU Race for Research - September
  • Newborn Screening Awareness Month - September
  • HCU Awareness Month - October
  • Popcorn Fundraiser - October
  • Giving Tuesday - 12/1

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