Bio
June Anderson is the proud grandmother of Carson, who was diagnosed with Severe MTHFR through newborn screening in Florida. Through Carson’s strength, resilience, and joyful spirit, June has become a dedicated advocate for the rare disease community and is grateful for the hope, support, and connections found through HCU America.
"Grandmother: It's a Family Affair"
What does life look like when Homocystinuria (HCU) becomes a part of your daily family rhythm? In this intimate panel session, Ethan, June, and Holly share their firsthand experiences navigating the complexities of supporting a loved one with HCU. From the initial shock of diagnosis and the steep learning curve of a low-methionine diet to the emotional weight of managing long-term health risks like blood clots and vision changes, this talk offers a window into the reality of the HCU journey.
