Step 5) How can I help others with HCU or Related Disorders?

You can help those affected by HCU through education and the sharing of accurate information about the disease and best practices for managing the disease. This can include the sharing of information with other families affected by HCU or related disorders, providing emotional support or helping to educate your medical team with what you learn and experience so that they can better help others.

Remember, your best advocate is yourself!

Recent Diagnoses